Myasthenia Gravis

I spent 4 years seeking a diagnosis, being misdiagnosed on two occasions. If you are experiencing fatigue that does not improve with rest and/or sleep, muscle aches and pains in the limbs that also tire easily with use, hoarse voice, weak or soft speech, choking on foods/liquids, or a droopy eye with double or blurry vision, go to your doctor and ask to be tested for myasthenia gravis. It is an auto immune disorder so some symptoms may mimic those of other illnesses.  However, a blood test can tell you if you have MG in most cases, with the exception of seronegative MG. This type will not show up in a blood test. In this situation you will want to ask your doctor to refer you to a neurologist for an EMG test which measures the electrical activity of muscles at rest and in use.

There is no cure for Myasthenia Gravis, but there are treatments available. Be sure to connect with a doctor who is knowledgeable with this rare disease and get involved in a support group. It will help to have others to talk to.

Deb Correia 3/26/17


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